Adaptive Exercise Equipment Legislation Introduced in North Carolina

This is a super proud advocacy moment for me!

Many of you that know me, know that I spend much of my time battling health insurance companies and helping individuals get the medically necessary durable medical equipment they need to not only survive in life but to thrive.  Over the last two years I’ve taken my mission one step further to focus on having adaptive exercise equipment for long-term wheelchair users put under a “Medical Necessity” Review under Durable Medical equipment. 

Today as it stands, under Medicare and private health insurance companies, any type of exercise equipment is considered a non-covered benefit item.  This means it does not have a code and will not get approved.  Unless you have specific laws in your state, are part of the VA, or have an “in,” you’re not going to have much luck in getting approval. I know … I’ve been fighting for an adaptive rowing machine called the Vitaglide for 2 years — With no luck I might add.  Even after writing a 35 page Letter of Medical Necessity backed up by over 130 peer reviewed journal articles, which took me 4 months to research & write, I was treading water.

Despite my 24 month herculean effort I still failed.

Step 2

I then decided to take my mission to Blue Cross and Blue Shield directly.  Through a series of internal contacts and help from the North Carolina Department of Insurance I started working with multiple policy directors.  I gave speeches, had zoom calls, created videos, and more.  This was a four tedious process trying to make a financial and medical argument for preventative healthcare for adaptive exercise equipment for long-term wheelchair users to be reclassified.  Honestly, this epically failed and several months ago I received a beautiful blow-off letter from Blue Cross and Blue Shield.  No bites.  You can see the attached letter yourself.

Step 3

Have no fear.  I was working behind the scenes with my North Carolina State Senator Jay Chauduri on this very issue.  In May 2020 we finally introduced legislation trying to mandate health insurance companies to put adaptive exercise equipment for long-term wheelchair users under a medical necessity review.  Very proud of this accomplishment.  However, I’m acutely and painfully aware, I might add, the success of this bill is slim to none.  However, this creates a beginning legislative track record for me.  I am now working on different plans over the next nine months to introduce more legislation.

It’s going to be a very long road, I’ve heaved advice from so many around the country, but I’m also kind of a one woman show on this front.  I just keep pushing and pushing and pushing.  I’m ridiculously determined, pleasantly persistent, and will continue down this road is long as there is someone to listen to me.

I simply won’t stop.  I don’t know how to give up.  I never have.  As Winston Churchill famously quoted “The Definition of Success is Moving from Failure to Failure without Lack of Enthusiasm.”  I live by this quote on a daily basis living with a long-term severe physical disability.

Change can start with one person.  You may not be able to affect national change by yourself, but you can ignite that spark in others, create a movement, and while you may not accomplish what you would like to in a year or two or 10 — I have no doubt I will ignite a spark in the younger generations to continue my work for many years to come!

Online Wheelchair Dating Tips

“ONLINE WHEELCHAIR DATING TIPS”

New YouTube episode out now – My dating life in a wheelchair as a C6 quadriplegic

Talking to you today about disability dating. Specifically, online dating tips I’ve used as a woman in a wheelchair and a C6 quadriplegic. Dating is challenging no matter who you are, but online dating is even more daunting – now online dating with a disability presents its own unique set of challenges! Several years ago before I got married I went on a giant dating experiment. I was facing a major surgery for a pressure sore I had and I had about five months to go before my 11th surgery.

I decided, quite truthfully, to just try and sleep with as many men as I could to explore my disability and sexuality. I probably should not be writing about this online or making a video, but this is my reality.

It took me 5 years to gain the courage to even start dating after my accident when I broke my neck in a shallow water diving accident in 2010 leaving me paralyzed from the chest down with limited hand mobility. Throughout my dating adventures I ran into all kinds of strange people, great people, and some guys who simply were curious about what it was like to sleep and/or date a woman in a wheelchair.

I have a very quirky sense of humor, so I created an Excel spreadsheet to monitor my success for online dating. I have been through it all. Hopefully some of what I have been through you will not experience, but I was on an experiment in the name of research! specifically, disability dating research! Even through my failures and successes I learned so much. Let me take you on a journey of some of my dating mishaps and wonderful successes!