Pushing Boundaries – Question the Status Quo!

Many of you know I’ve been fighting for an adaptive rowing machine called the Vitaglide for some time now with Blue Cross and Blue Shield.

I hit a dead end working directly with BCBS policy directors and I’m now introducing legislation with NC State Senator Jay Chaudhri in May. Very exciting!

In the meantime, I’m working closely with all of the folks at Vitaglide for promotion awareness of adapted exercise equipment for long-term wheelchair users.

They were so kind to write an article on me and all of the work I’m trying to accomplish with respect to health equity and not just health equality!

Every time I fail something, and I do fail quite a lot, or something stops dead in its tracks, I usually have 10 other things in the works.

Life can be utterly exhausting, but I know one person can make a difference even if it is only to inspire others to carry on the work they have started!

Thank you Vitaglide team for highlighting some of the work I am engaged in and spotlighting my consistent efforts for which I won Miss wheelchair North Carolina 2022 on — Health Insurance Advocacy! Nationals here I come in Grand Rapids Michigan from August 15th to August 21st!

www.vitaglide.com/one-determined-woman/

YouTube Channel Live – “Shower Talk with Ali”

YOUTUBE CHANNEL LINK: https://www.youtube.com/c/QuirkyQuad_Ali

This has been a project near and dear to my heart that I have been working on for the better part of a year, but projects have just been popping up left and there never really seemed to be a right time to take the leap. So, I decided weeks ago to just dive right in as they say (figuratively of course because I already took the physical dive 12 years ago;) – and, I certainly don’t have any desire to do that again!

I am incredibly humbled, honored, and proud to announce the launch of my new YouTube channel called

“Shower Talk with Ali – Where No Topic is Limit”

To complement my website and my writing I appreciate many people love to watch videos. In light of this, I’ve created this YouTube channel with the sole focus of approaching and normalizing uncomfortable topics in my life and the disability world so that folks from all walks of life can understand what many of us go through on a daily basis. This is not a channel just about inspiration, but really diving into understanding some of what many of us with disabilities live through each and every moment of our lives.

In the spirit of who I am I have approach many topics through the lens of dark humor, determination, and sheer grit at times. No matter what situation I may me dealing with in life I always seem to find the comedy behind every experience my life.

I do hope you enjoy, follow my channel, like, subscribe, and comment so that I might be able to make videos on what you are all interested in! This channel is by no means just for people with disabilities, but for EVERYONE may just be curious and loves to learn about topics that are very unfamiliar in your own life.

Introduction to My YouTube Channel:

PODCAST with Kevin Lowe

I was the guest on a super cool podcast with the most amazing gentleman named Kevin Lowe.

Kevin has an incredible story in his own right and he certainly makes the most of life with his incredibly quirky, and hilarious sense of humor.

Kevin too, shares a disability with me, but his is in the realm of sight. He is blind and has navigated his life so eloquently, with grace, and a ton of humor.

We had such a fabulous time during this podcast that I felt like I was chatting with an old friend who I had known for years!I would love for you to check out his podcast and start listening to him!

Rebel Love Podcast Now Live

Love, Sex & Orgasms …Yup, I went there live on Rebel Love Podcast!It was a blast speak with Talia on so many subjects and shedding light on disability and sexuality.

Naturally this is a topic near and dear to my heart since my website has a tagline on this very topic!I don’t know if many of you know this, but my entire advocacy mission in life started 6 years ago because of a dating experiment I would write about on my Facebook page.

This is actually how the QUIRKY QUAD Diaries was founded… Simply trying to show women with disabilities that a love life is absolutely possible even in a wheelchair 🙂

Also, to be completely honest it was super fun to write about sex at a time when I was dealing with major life changing surgeries!

EP39: Life As A Quadriplegic After A Shallow Water Diving Accident: Ali’s Story

Flowing East and West: The Perfectly Imperfect Journey to a Fulfilled Life all Podcast

I’m super honored to have been a guest on this incredible Podcast with two amazing ladies!

https://podcasts.apple.com/us/podcast/flowing-east-and-west-the-perfectly-imperfect-journey/id1546631522

Here’s the intro of what the podcast is all about – FEET FIRST:

“Ali Ingersoll had a somewhat charmed upbringing, attending boarding school abroad, going on amazing adventures and taking advantage of every opportunity that showed up.  Then a life-changing accident happened when Ali took a head-first dive into shallow water.  Feet First not only describes Ali’s plea for anyone jumping into shallow water, but also how she has lived her life, both before and after the accident.  While she is now restricted to a wheelchair, Ali continues to live life to the fullest  – wait until you hear her dating stories (sorry, guys, she is now happily married!) – we were both laughing hysterically.  This in no way means Ali hasn’t had ups and downs – indeed, she speaks very candidly about her challenges and dark days. However, in her toughest moments, she has developed an incredible resilience and a “radical acceptance” that we cannot help being inspired by.

Ali reminded us of this quote which we think perfectly sums up how she lives her life:

Disasters lead to the best stories – Ali Ingersoll

Ali Ingersoll is a day trader, consultant, disability advocate, writer, blogger, editor, and public speaker. She started her advocacy mission after being repeatedly denied medically necessary equipment by insurance companies over the last 10 years since becoming a C6 quadriplegic and full-time wheelchair user after a shallow water diving accident.”

Ali’s passion lies in coaching people with disabilities on how to improve their quality of life by teaching them to self-advocate in order to live a life of independence, dignity, and grace.

Ali has a firm philosophy of paying it forward by giving back to the community through outreach, working together, and building each other up. She believes it’s important to band together as one in order to affect the greatest change on the national stage and in local communities.”

How Wilderness Survival Trips Prepared Me for Spinal Cord Injury

I was 300 miles from civilization in the outback country of Western Australia in the Kimberly’s in 95° heat carrying an 80 lb. backpack with holes in the back of my heels the size of quarters bleeding profusely in my hiking boots climbing a mountain with no way to turn back.  All I wanted to do is stop hiking, but I was on the side of the mountain with jagged rocks and several other hiking comrades trying desperately to make it to the top while my feet could barely carry me a step further. 

I know I couldn’t complain because we were a team trying to hike our way to the next water source by the end of the day with nothing but a compass and a topographical map.  If we didn’t make it to the next water source by sunset we would have be stranded in the wilderness surrounded by King cobra snakes, chilling temperatures, exposed to the elements, and disoriented by the darkness of night.

Despite the agonizing torture of pain as I put 1 foot in front of the other – when we finally turned that corner or climbed over that mountain to find an oasis like waterfall in the middle of a desert like climate everything suddenly made sense.  I kicked off my boots, stripped off my clothes, and dove into the crystal clear pool of water to swim under the beating waterfall, which made that day of seemingly insurmountable challenges simply melt away.  It was paradise, but it was not without its perils to arrive at such a place.

This is just one memory of dozens I recall from my numerous wilderness survival trips I willingly participated in during my young teens to my mid 20’s prior to my spinal cord injury, which, I didn’t know at the time, was preparing me for the hardest journey of my life – living life as a quadriplegic with paralysis from the chest down.

Read the rest on Push Living Magazine: https://pushliving.com/how-wilderness-survival-trips-prepared-me-for-spinal-cord-injury/

I am so incredibly honored to have been posted on United Wheels Podcast by United Spinal Association with Paul Amadeus Lane the other week.

 

I feel truly blessed to be able to spread the message and help folks get “medically necessary equipment” approved by their health insurance companies. We have to stand together to fight together!

 

http://unitedonwheels.blubrry.net/meet-ali-ingersoll/

 

#quirkyquad #showertalkwithali #disabilityawareness #disabilityrights #disability #wheelchairgirl #wheelchairlife #fightforyourrights #standtogther #youcandoit #insurancebattles #insurancerights #spinalcordinjury #podcastfun #unitedspinal #crtawareness #advocacy #selfadvocate

The Art of Health Insurance Appeals: My Battle for a Power Wheelchair Seat Lift

As I was strapped into my electrical stimulation bike while simultaneously lifting weights I had my Bluetooth snuggly positioned into my ear listening to my “Rock it Out” music to keep my motivation over that next hour.  Pandora played a song by the black-eyed peas, which came out in 2010 called “I’ve got a feeling.” It’s an incredible dance song when you want to feel pumped up and I used to play it on repeat before my accident in 2010 when I was living at my home in the Bahamas…

… It was a time in life that reflected simplicity, clarity, and pure joy.  Life was so simple back then.  I was pumping myself up last week because I’m in another battle of a lifetime with Blue Cross and Blue Shield (BCBS) for a new power wheelchair…

… I started the uphill mission of working with my durable medical supplier, my physical therapist, and my general practitioner…

… Two weeks ago I did, finally, receive a letter from BCBS saying that they were denying me a very critical function of the wheelchair called the seat elevator.  This allows my power wheelchair to go up and down.  Most insurance companies do not think this function is medically necessary for folks in wheelchairs.  I then called all the parties involved and there was a complete disconnect among my medical providers.  So, in a very Ali fashion, I decided to take matters into my own hands.  The age-old saying “when you want something done right, do-it-yourself,” holds true 100% of the time …

… Without further ado, this is the appeal letter I sent into the BCBS appeals committee last week.  I will keep you posted on what their decision will be, but when you really want something, you’ve got a fight tooth and nail to get it.  Sadly, this is the reality we live in and the fact that we have to justify why we need certain items to insurance companies to, not only survive with the spinal cord injury, but to thrive with it is slightly disheartening.  However, this is the healthcare system we presently have to navigate within!

Read the rest on Push Living Magazine: https://pushliving.com/the-art-of-health-insurance-appeals-my-battle-for-a-power-wheelchair-seat-lift/

 

A DAY IN THE LIFE OF ALI AT 17 – CHINESE JAIL 101

In light of world events and the seriousness of everything many of us are going through with Covid-19 I thought it might be fun to talk about something completely off topic and also nothing related to spinal cord injury either!

The following is a tale of my adventurous and crazy exploits when I lived in China at a ripe old age of 17 and how I managed to land myself in Jail in Northern China near the border of Siberia.

I graduated high school at 17 and had no desire to rush off to college as so many do.  I decided to defer my acceptance into college for a year or so, but I had no idea where I wanted to go or what I wanted to do.  I walked into my father’s office and found one of those globes that spin around in a circle.  I closed my eyes and my finger landed on Beijing, China. Continue reading