PODCAST with Kevin Lowe

I was the guest on a super cool podcast with the most amazing gentleman named Kevin Lowe.

Kevin has an incredible story in his own right and he certainly makes the most of life with his incredibly quirky, and hilarious sense of humor.

Kevin too, shares a disability with me, but his is in the realm of sight. He is blind and has navigated his life so eloquently, with grace, and a ton of humor.

We had such a fabulous time during this podcast that I felt like I was chatting with an old friend who I had known for years!I would love for you to check out his podcast and start listening to him!

Rebel Love Podcast Now Live

Love, Sex & Orgasms …Yup, I went there live on Rebel Love Podcast!It was a blast speak with Talia on so many subjects and shedding light on disability and sexuality.

Naturally this is a topic near and dear to my heart since my website has a tagline on this very topic!I don’t know if many of you know this, but my entire advocacy mission in life started 6 years ago because of a dating experiment I would write about on my Facebook page.

This is actually how the QUIRKY QUAD Diaries was founded… Simply trying to show women with disabilities that a love life is absolutely possible even in a wheelchair 🙂

Also, to be completely honest it was super fun to write about sex at a time when I was dealing with major life changing surgeries!

EP39: Life As A Quadriplegic After A Shallow Water Diving Accident: Ali’s Story

Flowing East and West: The Perfectly Imperfect Journey to a Fulfilled Life all Podcast

I’m super honored to have been a guest on this incredible Podcast with two amazing ladies!

https://podcasts.apple.com/us/podcast/flowing-east-and-west-the-perfectly-imperfect-journey/id1546631522

Here’s the intro of what the podcast is all about – FEET FIRST:

“Ali Ingersoll had a somewhat charmed upbringing, attending boarding school abroad, going on amazing adventures and taking advantage of every opportunity that showed up.  Then a life-changing accident happened when Ali took a head-first dive into shallow water.  Feet First not only describes Ali’s plea for anyone jumping into shallow water, but also how she has lived her life, both before and after the accident.  While she is now restricted to a wheelchair, Ali continues to live life to the fullest  – wait until you hear her dating stories (sorry, guys, she is now happily married!) – we were both laughing hysterically.  This in no way means Ali hasn’t had ups and downs – indeed, she speaks very candidly about her challenges and dark days. However, in her toughest moments, she has developed an incredible resilience and a “radical acceptance” that we cannot help being inspired by.

Ali reminded us of this quote which we think perfectly sums up how she lives her life:

Disasters lead to the best stories – Ali Ingersoll

Ali Ingersoll is a day trader, consultant, disability advocate, writer, blogger, editor, and public speaker. She started her advocacy mission after being repeatedly denied medically necessary equipment by insurance companies over the last 10 years since becoming a C6 quadriplegic and full-time wheelchair user after a shallow water diving accident.”

Ali’s passion lies in coaching people with disabilities on how to improve their quality of life by teaching them to self-advocate in order to live a life of independence, dignity, and grace.

Ali has a firm philosophy of paying it forward by giving back to the community through outreach, working together, and building each other up. She believes it’s important to band together as one in order to affect the greatest change on the national stage and in local communities.”

How Wilderness Survival Trips Prepared Me for Spinal Cord Injury

I was 300 miles from civilization in the outback country of Western Australia in the Kimberly’s in 95° heat carrying an 80 lb. backpack with holes in the back of my heels the size of quarters bleeding profusely in my hiking boots climbing a mountain with no way to turn back.  All I wanted to do is stop hiking, but I was on the side of the mountain with jagged rocks and several other hiking comrades trying desperately to make it to the top while my feet could barely carry me a step further. 

I know I couldn’t complain because we were a team trying to hike our way to the next water source by the end of the day with nothing but a compass and a topographical map.  If we didn’t make it to the next water source by sunset we would have be stranded in the wilderness surrounded by King cobra snakes, chilling temperatures, exposed to the elements, and disoriented by the darkness of night.

Despite the agonizing torture of pain as I put 1 foot in front of the other – when we finally turned that corner or climbed over that mountain to find an oasis like waterfall in the middle of a desert like climate everything suddenly made sense.  I kicked off my boots, stripped off my clothes, and dove into the crystal clear pool of water to swim under the beating waterfall, which made that day of seemingly insurmountable challenges simply melt away.  It was paradise, but it was not without its perils to arrive at such a place.

This is just one memory of dozens I recall from my numerous wilderness survival trips I willingly participated in during my young teens to my mid 20’s prior to my spinal cord injury, which, I didn’t know at the time, was preparing me for the hardest journey of my life – living life as a quadriplegic with paralysis from the chest down.

Read the rest on Push Living Magazine: https://pushliving.com/how-wilderness-survival-trips-prepared-me-for-spinal-cord-injury/

I am so incredibly honored to have been posted on United Wheels Podcast by United Spinal Association with Paul Amadeus Lane the other week.

 

I feel truly blessed to be able to spread the message and help folks get “medically necessary equipment” approved by their health insurance companies. We have to stand together to fight together!

 

http://unitedonwheels.blubrry.net/meet-ali-ingersoll/

 

#quirkyquad #showertalkwithali #disabilityawareness #disabilityrights #disability #wheelchairgirl #wheelchairlife #fightforyourrights #standtogther #youcandoit #insurancebattles #insurancerights #spinalcordinjury #podcastfun #unitedspinal #crtawareness #advocacy #selfadvocate

The Art of Health Insurance Appeals: My Battle for a Power Wheelchair Seat Lift

As I was strapped into my electrical stimulation bike while simultaneously lifting weights I had my Bluetooth snuggly positioned into my ear listening to my “Rock it Out” music to keep my motivation over that next hour.  Pandora played a song by the black-eyed peas, which came out in 2010 called “I’ve got a feeling.” It’s an incredible dance song when you want to feel pumped up and I used to play it on repeat before my accident in 2010 when I was living at my home in the Bahamas…

… It was a time in life that reflected simplicity, clarity, and pure joy.  Life was so simple back then.  I was pumping myself up last week because I’m in another battle of a lifetime with Blue Cross and Blue Shield (BCBS) for a new power wheelchair…

… I started the uphill mission of working with my durable medical supplier, my physical therapist, and my general practitioner…

… Two weeks ago I did, finally, receive a letter from BCBS saying that they were denying me a very critical function of the wheelchair called the seat elevator.  This allows my power wheelchair to go up and down.  Most insurance companies do not think this function is medically necessary for folks in wheelchairs.  I then called all the parties involved and there was a complete disconnect among my medical providers.  So, in a very Ali fashion, I decided to take matters into my own hands.  The age-old saying “when you want something done right, do-it-yourself,” holds true 100% of the time …

… Without further ado, this is the appeal letter I sent into the BCBS appeals committee last week.  I will keep you posted on what their decision will be, but when you really want something, you’ve got a fight tooth and nail to get it.  Sadly, this is the reality we live in and the fact that we have to justify why we need certain items to insurance companies to, not only survive with the spinal cord injury, but to thrive with it is slightly disheartening.  However, this is the healthcare system we presently have to navigate within!

Read the rest on Push Living Magazine: https://pushliving.com/the-art-of-health-insurance-appeals-my-battle-for-a-power-wheelchair-seat-lift/

 

A DAY IN THE LIFE OF ALI AT 17 – CHINESE JAIL 101

In light of world events and the seriousness of everything many of us are going through with Covid-19 I thought it might be fun to talk about something completely off topic and also nothing related to spinal cord injury either!

The following is a tale of my adventurous and crazy exploits when I lived in China at a ripe old age of 17 and how I managed to land myself in Jail in Northern China near the border of Siberia.

I graduated high school at 17 and had no desire to rush off to college as so many do.  I decided to defer my acceptance into college for a year or so, but I had no idea where I wanted to go or what I wanted to do.  I walked into my father’s office and found one of those globes that spin around in a circle.  I closed my eyes and my finger landed on Beijing, China. Continue reading

NAVIGATING THE CORONA PANDEMIC – A DIFFERENT PERSPECTIVE

Today is the first quiet moment I have had in over six weeks and I realized I had not engaged in one of my favorite activities – Writing!  Life has been a fast-paced world wind of excitement, chaos, joy, and hustle recently.  This doesn’t even include the elephant in the room at the moment of our current Pandemic of the Coronavirus!

In November my husband and I purchased our first home, started renovations, packed up our old apartment, and made the Herculean effort of moving a quadriplegic to a new home all before the race of the Coronavirus.  It has been nonstop for me and I’m elated to find a quiet moment today to get back to what I love.

We are finally moved into our beautiful new home, getting settled in, and trying to make our home finally feel like a home.  In short, we have been “Adulting!”  I had a singular mission of trying to move into our home, but on the tail end of moving the Coronavirus started moving at accelerated rate – although not before we were able to physically get into our new condo.  Thankfully, at present, we are quarantined at home and are both still busy working while still having endless To-Do projects.

My husband, Aaron, has been working tirelessly for the past 9 months and we have barely had time to spend together, so it’s a treat to be able to be locked in the house together.  When we don’t feel like it’s such a treat to be locked in together 24/7 — then we have wine 😉

Over the last 10 years I’ve never really been able to take a real shower and having my newly renovated bathroom is a dream come true.  Last week I had my ceiling lift installed, which was so fun as I was swinging like a monkey.

Now, I don’t have a shower chair yet as things have pretty much come to a stop from a retail standpoint with the pandemic, but looking at my shower at the moment is equally as gratifying.  I’m sure once I take a real shower I will have a different take on it.

The last several weeks have not been without their challenges though as millions of Americans are presently feeling.  I lost a caregiver, found a great new one, but am unable to physically work with him yet as we have “stay at home” orders directed by the state of North Carolina. Bringing someone into your home during a pandemic is probably not a brilliant idea considering I have a compromised immune system and less lung function than most.

I’ve spoken to dozens of friends who are disabled and able-bodied, and life generally is not looking rosy for most folks right now.  I don’t even know what this country will look like when we are done with this, how we will rebuild, how the financial system is going to recover after a $2 trillion stimulus, but there is one thing I do know.  The only way we are going to get through this is if we stick together and not trample thy neighbor for a roll of toilet paper. Continue reading

Aquatic Therapy – The Story of a Paralyzed Mermaid

 

Thinking back to my childhood I recall playing the “what do you want to be when you grow up” game with other kids.  My answer was always a resounding “mermaid.”  The water has always been such a central part of my life having grown up in the Bahamas.  When I broke my neck nearly 10 years ago, I couldn’t imagine how life would continue if I was unable to get back to the aquatic lifestyle I had become accustomed to.

When I was in the ICU and inpatient rehab the first few months after my accident, I was also battling a stage III pressure sore on my sacrum.   I could not wrap my head around how I would ever get back into the water.  I saw many other SCI folks start to dive back into activities in rehab, but I was not as fortunate. I was confined to bed rest all day, except for several hours of rehab, due to the raging pressure sore I had sustained during transport from the Bahamas to Miami after the accident.

While I stayed focused in rehab, worked on my computer, and made the best of my situation, I started to give up hope that I would ever get back into the water again.  Once I was released from rehab and sent home, I kept asking my caregivers and my mom every day if my pressure sore was healing, and I kept asking wound nurses how long it would take.  I didn’t know if I going to be able to get back in the water, but my family and I kept researching swim instructors anyway.  Somehow, I held onto a glimmer of hope despite the mounting medical challenges I was facing.

Read the rest on Push Living Magazine:  https://pushliving.com/aquatic-therapy-a-story-of-a-paralyzed-mermaid/

 

The Downfall of Our Healthcare System: A Harsh Reality

The battle I was fighting today was one of in-network providers. I need to give you little context as to how healthcare has changed over the last several years. While I understand Obama Care has many faults, several years ago the system was much more amenable to those in need than it is today. Frankly none of the systems we have work for healthcare today, but things have gotten MUCH worse over the last few years.

While I do work, this is really a fraction of what I do in my day. Many days are spent on hold for hours on end fighting with insurance companies, figuring out why a new part of my body has developed pain, driving around town to endless doctor’s appointments, handling the anxiety of hoping a caregiver will show up for work, and enduring the grueling process every single morning of having people put their fingers in my body just to go to the bathroom, and so much more – all at 36 years of age. This is not what I had envisioned my life to be no matter how much I make light of the situation I am in.

Today, however, my tears grew to rage as I finally got a human being on the phone from Blue Cross and Blue Shield. The fact that I have to fight for every detail to try and get covered by my health insurance is borderline criminal. Is it not enough to have to deal with the injury alone? I know I am not alone in this fight as so many of my other friends with spinal cord injuries are in a constant never ending war with bureaucracy trying to survive.