Wheelchair Air Travel – “Quad” Style

 

…If only air travel for a complete C6 quadriplegic paralyzed from the chest down were so easy!  Since my accident nearly 8 years ago I have flown a handful of times.  Most of my flying expeditions consisted of me moving across the world to China back in 2013, which involved flying an aircraft for over 15 hours at a time.  Back then flying seemed incredibly daunting, but I always had a village of the family to help me along the way.  I had never flown with just one other person before…

… I read many reviews on different airlines and I decided upon Delta Airlines.  I was looking at prices and I knew I wanted to fly economy because if I wanted to travel in the future saving money for business class would take away from money I could spend on adventures to wherever we would be flying to.  However, I decided to take baby steps.  I sprung for an extra $100-$200 and upgraded to Delta Comfort.  Delta Comfort Class is essentially Economy Plus.  This gives you a few extra inches of legroom, which I thought for our first mission would be appropriate considering that I needed the extra room for my knees because I am so tall. …

Read the rest on Push Living Magazine:

https://pushliving.com/wheelchair-air-travel-quad-style/

Cruise Ship Adventures & Wheelchairs – Lessons Learned

Several months ago my boyfriend and I were set to celebrate our two-year anniversary of being together. We wanted to take our first solo vacation somewhere tropical and most importantly we wanted to do it alone. Needless-to-say I was quite nervous at the prospect of having my partner take care of me with respect to all aspects of caregiving, and travel. He is such a phenomenal individual in that he has always been interested in making sure that he could take care of me by helping me dressed, showering me, taking care of my bathroom needs, and, most importantly, ferociously loving me! It took us quite a while to get to the point where I was comfortable showing a man those intimate details of my care, and all of the “not so sexy stuff” that comes along with dating a woman in a wheelchair.  The point is we finally got there over the last several years, so I thought it only natural to take the next step to see if we could really take our relationship to the next level, and travel alone together.

After countless hours of exploring our options, I decided that a cruise was probably our best bet. It was cost-efficient, I could take as many bags as I needed on the ship, and I could easily take both my wheelchairs. I live in Raleigh, North Carolina, so I knew I could drive 9 to 12 hours down to Florida in my van with all of my gear. One thing the two of us love to do is swim together, sit by the ocean, and go on adventures. I thought starting out with a seven day vacation down to the Western Caribbean would give us enough time to enjoy ourselves, but not too long in case things went sideways.

I posted a detailed account of our journey day by day on my personal blog if you are interested in every step of our journey. For the purposes of this article, I want to summarize some of the pros and cons of cruising as a handicap passenger.

Read the rest on Push Living Magazine: https://pushliving.com/cruise-ship-adventures-wheelchairs/

 

 

Long-Term Relationship Physical & Emotional Intimacy with Spinal Cord Injury

Who knew that my first serious long-term adult relationship would be after my spinal cord injury? I certainly did not! I was always the type of girl to have 1 foot in a relationship and 1 foot out in my 20’s. When I would break up with the guy I would usually move cities or countries. Truth be told after my accident I figured I had my shot at relationships and I would likely be single the rest of my life, which I was surprisingly okay with for many years. When I first started dating in a wheelchair I had an array of gentleman callers in order to explore my sexuality years after my accident. I’ve written about my dating adventures in multiple blogs, but I’ve never really touched on the subject of how my current boyfriend and I have grown to fall deeply, and madly in love.

It was not until this past year that I really started to understand what emotional intimacy meant and how one really has to work at it keep a relationship alive. In my opinion, emotional intimacy is the glue which holds a long-term relationship together. Even if you have a super strong connection initially, the more time you spend with someone and the better you get to know them, the deeper your connection can become — and emotional intimacy in a long-term relationship is so much different than emotional intimacy in a brand-new relationship.

In new relationships we can reflectively listen, spend quality time with our partner without distraction, and make thoughtful gestures to build closeness.

At the time I didn’t realize what this meant, but approaching relationships from a slightly different angle with spinal cord injury has made me appreciate what this means. When I first started dating my boyfriend I spent the first year actively keeping him out of every aspect of my spinal cord injured life with respect to caregiving. I wanted to take the time to get to know him as a person, and, more importantly, I truly believed that keeping the “paralyzed” part of our relationship was the best way for us to grow. Looking back, I am happy with the results, but I probably could’ve shared all of me sooner as opposed to just part of me. Continue reading

ROYAL CARIBBEAN CRUISE ADVENTURE (Part 3)

Continuing on with our Royal Caribbean Cruise Adventures …

Day 5 – Belize Mayan Ruins

5 AM on Thursday … As the alarm clock started ringing Aaron and I groggily looked over on each other debating whether we should go explore some Mayan ruins in Belize or take the day to sleep. Cruises can be exhausting if you are always on the hop with different shore excursions. However, you must keep in mind that this was my first real vacation in 8 years without any of my family or caregivers. So, while we might’ve squeezed a few too many adventures into our 7 days, Aaron popped out of bed and made quick work of getting me ready to go explore thousands of years of history!

We arrived in Belize City early that morning, but were anchored offshore. We were anchored at what is called a tendered port. Essentially, you have to take small little dinghies seating anywhere between 50 to 80 people from the cruise ship over to the port of Belize. These little tendered ports are not for the faint of heart, especially in a wheelchair, because with the rocking ocean and trying to lift my manual chair onto this little boat presented its own unique set of challenges. Fortunately, the weather was quite calm so we were able to physically leave the ship, but there are days when they will not allow a wheelchair to maneuver onto the small vessels.

Ligia, our concierge attendant on Royal Caribbean, escorted us to the tendered boat as we skipped all the lines 🙂 I was decked out in sneakers, sports cloths, my manual chair, and ready to get bounced around! It took us about 30 minutes of rocking around on this boat, but we made it to the dock. I’d been to Belize nearly 10 years ago and from what I had recalled, which turned out to be exactly correct, Belize City is no joke from a dangerous perspective. It is not a city you want to go roaming around in alone as a tourist … and certainly not with an expensive wheelchair! It has a very high crime rate, poor infrastructure due to a hurricane hitting the city years prior, and not a very friendly crowd. When we arrived at the docks there was a small little area for tourists and tour guides to meet up with one another, make haste of getting into a van, and getting the heck out of the city!

Since I hired a private accessible tour company who partners with local tour companies who claim to be handicap accessible, and who would be able to show us the Belize Zoo in addition to some Mayan Ruins – I was pretty excited! We did have quite a bit of bother trying to find our tour guide due to many miscommunications, but we did eventually find him.  We were running behind schedule though. I wasn’t quite sure how far away our excursions were, but we literally had to be back to the boat in five hours.

Our tour guide, Ricky from Roam Belize Tour Company, greeted us with a smile and proceeded to show us the way to our “accessible” handicap van. Well, there was a van, and there was a ramp that you had to take out of the van to attach to the rear of the vehicle to push me up. I would say it was accessible, but not particularly accessible friendly if you know what I mean 🙂 Once I was loaded into the back of the van I was looking for straps to lock in my wheelchair. Ricky informed us that there were no straps as they were a tour company that was just getting up and running with providing accessible tours to folks in wheelchairs. The way the van seats were laid out, unless I was a paraplegic and could transfer my own, was not going to work to transfer me onto an actual van seat because Aaron could not lift me up with a height of the van.

I did call the company to confirm and I filled out many forms saying that I was paralyzed from the chest down, and that needed to stay in my wheelchair, but being a foreign country things get lost in translation sometimes. No big deal we thought!

Continue reading

ROYAL CARIBBEAN CRUISE ADVENTURE (Part 2)

Continuing on with our Royal Caribbean Cruise Adventures …

We spent the first night, Sunday night, on the ship a little later than we planned dancing the night away. On Monday morning we docked in Key West, Florida for our first day’s adventure.

DAY 2 – Key West, Florida

We docked right in the center of the city of the island of Key West. For those of you not familiar with Key West, it is the coolest little funky island, and is the farthest South Island on the chain of the Florida Keys. It takes about 3 ½ hours to drive there on one road from Miami, Florida. It is filled with eclectic bars, unique restaurants with their own personalities, 1 million little shops with fabulous trinkets, and a group of folks who are so unbelievably laid-back. Most of the locals on Key West are the kind of people you just want to hang out with with the beer by the water, and hear their life adventures.

“The Port of Key West”

I’ve been to Key West many times before as I previously lived in Miami for about 10 years. On one of my adventures down to Key West with one of my great friends from college we ventured down to the island for something called Fantasy Fest. Fantasy Fest is kind of like a Mardi Gras down in the keys. Thousands of folks drive down, dress up in the most wonderfully outrageous costumes, walk the streets, and party the night away. When I was 21 we headed down to Key West, but we forgot to book a hotel. So, we took my sisters truck and decided we would find a parking lot, and sleep in the back cab.

I was unbelievably surprised at the copious amounts of folks strolling around in giant penis costumes, body paint, and a ridiculous amount of other fun filled costumes. Of course we got ourselves into all kinds of devious trouble, met cute boys, partied the night away, and by 3 AM in the morning we ventured back to a church parking lot where we paid $70 to park our car for the night. When we woke up in the morning we were sleeping in the back of the pickup truck with our little feet hanging out the back side. We woke up to some strange folks tickling our feet… I’m not kidding. It was disturbing and hilarious all at the same time.

Anyway, I had the opportunity to take my power chair off the ship as Key West is relatively accessible. There is this one fabulous restaurant I’d remembered from years prior called Blue Heaven that was wildly eclectic with the best pancakes I’ve ever eaten, and a laid-back atmosphere that made you want to just sit in a hammock with the Corona, and drink the day away. Unfortunately, we only had a few hours to dive into Key West, so I had to make a strict itinerary so we could see a few things before we headed back to the ship. We met one of Aaron’s long-term family friends who had retired in Key West for lunch at Blue Heaven. We laughed, drank, ate delicious food, and then strolled around the little eclectic streets of Key West for hours. Key West doesn’t have many hotels, but rather these old colonial Bed & Breakfasts, which are just precious historical gems I would recommend if you head down that way. Now, they are not particularly handicap accessible, but if you’ve a strong man who can carry you up the stairs … Go for it!

“This sign display had been up for the last 15 years… I had been dying to take a picture and pay someone to watch them shower for a while ;-)”

 

We ended the afternoon at a Tiki hut bar, my absolute favorite, right on the ocean with some reggae music watching the boats sail by, and enjoying the 80° weather while sipping on some lovely alcoholic beverages.

As the day ended we boarded our ship and we were met by our fabulous concierge, Ligia. Continue reading

Let’s Talk about Sex Baby

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I mean really, who doesn’t love sex? I suppose it is one of those taboo topics that you don’t talk about at the dinner table like politics or money, but it is such a natural act – I’m not quite sure why we are so weary to talk about the subject publicly.

Before my accident I thoroughly enjoyed sex, exploring my sexuality, and engaging in as much sex as I could 🙂 Admittedly, I probably had sex too young, but as the saying goes “curiosity killed the cat,” “curiosity killed my virginity.” I was a young teenager and I simply had to know what all the fuss was about. I even let a guy convince me that I could not go to high school a virgin because I would be the odd man out. How gullible we are as young teenagers!

For several years I couldn’t understand what all the fuss was about as I don’t think I was doing it quite right … Not that many teenagers, in my opinion, know how to enjoy sex anyway. I finally met a guy when I was living in the Bahamas one summer who was several years older than I was and he really taught me about the enjoyment of sex. I mean we literally had sex classes on a daily basis with respect to experimenting with what felt good to me, what felt good to him, trying different positions, oral sex, etc. It was also new and exciting to me, and by the time our lessons had completed at the end of the summer I felt like I had earned a degree in sexual pleasure … Probably not something most parents want to learn about their children as teenagers 😉

“Partying in my young 20’s with my sister”

Over the next 10 years before my accident I had multiple partners and I was not ashamed of it either. Naturally, I think I was called several “not so nice names” by women around me, but I simply didn’t care. I was a completely free spirit and enjoyed sex just as much as I did hiking in the wilderness. I wanted to keep a diary for the future of all of my “Sexcapades” because in my mind I thought one day I would always write a book about sex. At that time Chelsea Lately was one of my role models and she had a brilliant book called “One Night Stands.” While I did have some more thoughtful and influential mentors, she was definitely my sex mentor. I decided to keep a little black book with all of the men I had slept with over the years. Honestly, sometimes I couldn’t remember their names, but I remembered where I met them, what they were wearing, what they looked like, what we did, etc. I will spare you the hot and juicy details, but after my accident I completely forgot about this book.

When I broke my neck the concept of sex completely flew out the window for me. I considered myself “A sexual” at that time and figured sex was behind me, which did not make me very sad because I certainly had my fair share of fun for 27 years before my accident in 2010. However, years later amongst all of my things I found multiple pieces of paper stapled together with all of my sexual exploits in a box. I must admit I was laughing my ass off because I had forgotten about many of these gentlemen. I decided to take the time and type several pages of stapled paper into a digital black book of sorts. I still have it to this day and I think that is what probably prompted me to finally start dating five years after my accident. A funny inspiration, but my personal story none-the-less.

Post-Accident Sex Continue reading

My Intimate Experience with a Paralyzed Guy BEFORE My Accident

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When I was strolling along the Art Deco streets of South Beach with my boyfriend this past month while on vacation in Miami I stumbled across one of my old stomping grounds … A beat up Irish pub called the Playwright where I would love to dance and get into trouble. I couldn’t resist popping in for memory sake when a flashback hit me of an experience I had with a gorgeous man in a wheelchair.

Beautiful South Beach

I must have been 24 years or so when I was out late one night and I spotted this beautiful man sitting at a table with his friends. I’ve always been the type of person to go up to random people and start talking to them. I walked over to the table, took a seat, and decided to strike up a conversation with the group. They happened to be from Australia and I have always been a sucker for Australian accents.

I was attracted to this one guy in particular and we started flirting. Continue reading

My Famous “Underwear” Dates!

When I first started online dating and meeting gentlemen I wasn’t quite sure how things would progress when I reached the bedroom stage of the relationship. I am paralyzed from the chest down with some arm function.  So, in order to get me into bed I have to have somebody lift me, take off my close, clean my catheter, and get me into position. Clearly this is not the most sexy activity and I was not quite sure how I was going to proceed with getting naked with men that I did not know very well.

As multiple dates progressed it was getting to the point where I was probably going to have to stop secret make out sessions around my apartment complex and take them upstairs. I explained to my gentleman callers I had caregivers that would help me with my daily living activities, but I did not explain what that entailed.

Several of these men were courting me and I felt I was at that point and comfortable to where I wanted to dive in and have sex with them. This still left me with the conundrum … How on earth was I going to look sexy for the first time?

I woke up one morning racking my brain because I had invited one of these men up to my bedroom on a Friday night and it was presently Wednesday morning. All of a sudden it dawned on me that I should be all prepared in bed for them so they did not have to do any work. I could put on sexy lingerie, tape my catheter tube to my body so they did not rip it out, lay myself in a somewhat attractive position, and have them walk into my apartment.

The next question that was playing in my mind was how to tell these guys that I would be ready for sex and all they had to do was walk into my apartment. I agreed with my caregivers beforehand that they would hide in their room when the guys walked in in order to not make them uncomfortable.

The term “UNDERWEAR DATE” was born. Essentially, I would be in my knickers and a sexy little blanket waiting for action! I didn’t think these guys would have any problem with the concept as I pretty much could not make it any easier for them 🙂 You must remember that this was a time in my life when I wanted to experiment sexually and I was not interested in a relationship. I needed to explore my body sexually and figure out what worked for me, and what did not. Clearly this would require a little bit of experimentation, a great deal of humor, and a carefree attitude.

“I was trying to be wonder woman in bed! A girl’s gotta do what a girl’s gotta do”

I will not going to details of all of my underwear dates, but I will highlight a few of the funnies. Continue reading

SEX & ORGASMS….. Yes Please!

Considering the Quirky Quad Diaries is a blog on “Sex, Sass, and Spinal Cord Injuries” I thought I would dive into the topic of Sex in intimate detail!

Sex … I grew up in a culture in Europe where sex was a very open topic. I was taught to embrace my sexuality and not be ashamed of it, which so many societies, especially here in the United States, seem to shy away from.

Most sex shops are in the back of parking lots and buildings with no windows. I’m not quite sure why as a culture we are ashamed to go buy a porno film, vibrator or any other sexual toy that one desires. Why are we so quick to judge people on race, sexual desires, sexual preferences, etc.? The human condition perhaps?

This spills over into another topic. SEXUALITY & BEING HANDICAP. From numerous conversations with handicap folks and able-bodied folks over the years I’ve come to gather the impression that many people think just because someone is paralyzed that they are not sexual, cannot feel sex, nor do they enjoy it.

This is a very sensitive topic for most and one I am also intimately familiar with. For almost 5 years after my accident I did not think I would ever find love, have sex again, or find someone who would see beyond my disability. Whether you are overweight, short, tall, skinny, disabled, mentally impaired, or different it can be easy to assume sexuality can go out the door. I did not feel sexual, pretty or desirable as I did before the accident, which took me many years to overcome.

However, this particular blog is not about the emotional roller coaster of dealing with sexuality and being handicap. I want to focus on the physical act of Sex. I am constantly flooded with questions from handicap folks and able-bodied folks alike with respect to what the sex actually feels like for me? How about for most handicap folks?

While I cannot speak for everybody I can say that when you do have a spinal cord injury sex dramatically changes. The sexual nerves are wrapped around the bottom part of the spinal cord called the sacrum. If you sustain a spinal cord injury then your sexual function is impaired in the traditional sense no matter how paralyzed you are; whether from the neck down, chest down, waist down, legs down, etc.

As I was preparing to have sex for the first time I had no idea how it was going to feel like or if I would be able to orgasm.

The first question is what is an Orgasm?

Continue reading

Welcome to the “Quirky Quad Diaries”

This blog and website has been a long time in the making. I created the Quirky Quad Diaries on my personal Facebook page over the last year and a half. Several months ago I realized I had over 80 pages of blogs written on Facebook, but they were lost to the news feed.

So, I got off my butt and decided to create a website & blog to share my stories. Now, you can browse my stories, blogs, and other sections of this website at your leisure in an organized manner.

I created the Quirky Quad Diaries to share stories of my life experiences before and after the accident, crazy adventures I have experienced, things I have been through, and so much more. Hopefully, and above all, I will make you laugh, but I may make you cry, shock you, and hopefully will be able to bring a little joy to some people’s lives 🙂

I will do my utmost to post a blog each week unless I am on some sort of crazy adventure.

I have created multiple sections for this blog, so please poke around and explore!

About Me

Blog

Pictures

Crazy Medical Stories

My Life

Get Involved

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Please feel free to reach out to me as I love to help everyone and anyone in any way I can!