Such a cool Podcast to be part of – Thank You Sandee Sgarlata for having me a guest!
I was the guest on a super cool podcast with the most amazing gentleman named Kevin Lowe.
Kevin has an incredible story in his own right and he certainly makes the most of life with his incredibly quirky, and hilarious sense of humor.
Kevin too, shares a disability with me, but his is in the realm of sight. He is blind and has navigated his life so eloquently, with grace, and a ton of humor.
We had such a fabulous time during this podcast that I felt like I was chatting with an old friend who I had known for years!I would love for you to check out his podcast and start listening to him!
Love, Sex & Orgasms …Yup, I went there live on Rebel Love Podcast!It was a blast speak with Talia on so many subjects and shedding light on disability and sexuality.
Naturally this is a topic near and dear to my heart since my website has a tagline on this very topic!I don’t know if many of you know this, but my entire advocacy mission in life started 6 years ago because of a dating experiment I would write about on my Facebook page.
This is actually how the QUIRKY QUAD Diaries was founded… Simply trying to show women with disabilities that a love life is absolutely possible even in a wheelchair
Also, to be completely honest it was super fun to write about sex at a time when I was dealing with major life changing surgeries!
I’m super honored to have been a guest on this incredible Podcast with two amazing ladies!
Here’s the intro of what the podcast is all about – FEET FIRST:
“Ali Ingersoll had a somewhat charmed upbringing, attending boarding school abroad, going on amazing adventures and taking advantage of every opportunity that showed up. Then a life-changing accident happened when Ali took a head-first dive into shallow water. Feet First not only describes Ali’s plea for anyone jumping into shallow water, but also how she has lived her life, both before and after the accident. While she is now restricted to a wheelchair, Ali continues to live life to the fullest – wait until you hear her dating stories (sorry, guys, she is now happily married!) – we were both laughing hysterically. This in no way means Ali hasn’t had ups and downs – indeed, she speaks very candidly about her challenges and dark days. However, in her toughest moments, she has developed an incredible resilience and a “radical acceptance” that we cannot help being inspired by.
Ali reminded us of this quote which we think perfectly sums up how she lives her life:
Disasters lead to the best stories – Ali Ingersoll
Ali Ingersoll is a day trader, consultant, disability advocate, writer, blogger, editor, and public speaker. She started her advocacy mission after being repeatedly denied medically necessary equipment by insurance companies over the last 10 years since becoming a C6 quadriplegic and full-time wheelchair user after a shallow water diving accident.”
Ali’s passion lies in coaching people with disabilities on how to improve their quality of life by teaching them to self-advocate in order to live a life of independence, dignity, and grace.
Ali has a firm philosophy of paying it forward by giving back to the community through outreach, working together, and building each other up. She believes it’s important to band together as one in order to affect the greatest change on the national stage and in local communities.”
There’s an art and a science to pretty much everything in life and surviving for weeks on end in the ICU is no different. With a majority of medical professionals being woefully under trained in all of the secondary complications accompanying spinal cord injury, the thought of trying to stay alive while you’re in the hospital can be a daunting prospect -especially when you have to play your own investigator in assisting these professionals with your diagnoses.
However, while there’s definitely a certain amount of research, planning, and preparation that needs to be thought out by the patient when you are essentially locked into the hospital by your medical professionals; you can have a little fun with it as well. Living on the edge of life and death, as many folks with spinal cord injury will very likely attest to, I find taking a dark humor outlook on most situations to be healing for my body, and my soul.
Despite my long ICU stay in 2016, I maintained a cheery disposition, but this time I decided to do something a little bit wackier to pass the time. What pray tell did I do you may ask?
Why an ICU sexy photo shoot of course!
Check it out on Push Living Magazine:
I am so honored to be featured once again in New Mobility Magazine to talk about my marriage, the challenges we face, and how we work through them. Marriage is challenging enough, but when you add in the layered complexity of disability into a relationship I find that you have to work even harder on communication and making things work.
Check out the article below and I hope you enjoy 🙂
Recently my husband and I took a week long vacation to visit a friend in Florida. I distinctly remember one day when he was helping me with all of my bathroom duties, getting my swimsuit on, lifting me up from a very low surface bed (killing his back), lifting me into the pool, showering me by the pool, helping me with my makeup, straightening my hair, and then cleaning up. These are just a few of the things he’d helped me with that day, but the list really does go on.
The numerous amount of small things I need help with in a day seem endless whether that be filling my water bottle, fixing my feet on my wheelchair, grabbing my legs as I have uncontrollable spasticity, getting me in bed when my pain is through the roof, etc.
The day came and went, and as I was hanging out with my girlfriend I rolled back into the bedroom to find him sprawled out on the bed. He was just tired – I mean how could he not be? He was taking care of his quadriplegic wife 24/7 for 8 straight days. I remember thinking how guilty I felt for being such a burden, but not once did he make me feel that way. These are my own demons I battle with as a quadriplegic because I need full-time help every day – all day.
Read the rest on Push Living Magazine to see how we make it work as a couple!
As I was lying in bed last night the metaphorical wheels were turning in my head with respect to the next move I am planning on making towards my advocacy mission with getting durable medical equipment and services paid for by Goliath health insurance companies. My mind unexpectedly wandered off into the most unlikely of places. I needed to wind down my brain to try and overcome my insomnia when I started giggling out loud.
Somehow I started reflecting on some of the most embarrassing moments I’ve endured over the last 10 years living this life in a wheelchair. When living with a spinal cord injury there are a 1,001 things that can go wrong in your life on a daily basis, most of which are frustrating, dangerous, embarrassing, and suck the life out of you, but I find there can be humor in most situations.
Whenever I read other people’s blogs, websites, stories, etc. I find the ones most interesting who share their personal experiences in a raw form because so many of us can relate to those moments. If you do not have a disability, I’m sure what I’m about to share with you will hopefully make you laugh, perhaps shy away from reading a certain sentence or paragraph, but at the very least will make you appreciate some of what many of us with varying disabilities deal with on a daily basis. If you do have a disability I’m sure you can relate to at least one of my stories!
Without further ado, I’ve invited myself to a “Roasting” as they say in the celebrity business. Continue reading
We should be enraged, inspired to change, and determined to fight as Americans with the state of our healthcare system in this country. The fact that we spend 2 to 3 times more on health insurance in the United States for subpar services as compared to many other countries in the world is outrageous. It speaks to the issue of no regulatory authority in our healthcare system. The government does not regulate healthcare prices resulting in huge price variations in addition to, but certainly not limited to, consistent denials for countless medically necessary services and products for many hard-working Americans.
-I have a Story –
Tens of thousands of others share similar stories. I’ve had enough and it’s time to fight for my survival and for those who cannot do it for themselves. I’m hard-working, pay into our governmental system, and spend $8,000-$13,000 per year out-of-pocket for health insurance only to be denied medically necessary equipment at every turn. I have spent hundreds of hours over the last several years fighting quietly for medical services I need and now it’s time to take the fight public. This is an issue of basic human dignity so that I may live my life with independence and freedom despite being severely physically disabled.
Read the Rest on Push Living: https://pushliving.com/the-fight-for-survival-health-insurance-battle-tactics-for-medically-necessary-services-part-2/
I’ve always been curious by nature whether that be understanding the physics of a white dwarf star in our universe or diving into the world of neural plasticity to study how the brain can change itself or simply figuring out why human history always seems to repeat itself. There is no topic to simple or complex that doesn’t intrigue me in some fashion.
Over this past weekend I took a few hours, as I often do on lazy Saturday mornings, to poke around the Internet to stimulate my intellectual curiosity on unknown topics. Much to my surprise, I stumbled upon a short video clip produced by Business Insider Today on the topic of the Digital Sex Industry. I must admit this is not a topic I have given much thought to, or ever for that matter, but it piqued my curiosity leading me down my proverbial inquisitiveness rabbit hole.
The wheels in my head started turning as I was thinking about sex, which many of you know I’m very open about and cannot understand why sex is such a taboo topic to discuss in public – much like money or religion. In any event, I wanted to explore the rise in the digital sex industry over the last several years, and in particular, how the industry has changed over the last two months in light of Covid-19. Continue reading