Aquatic Therapy – The Story of a Paralyzed Mermaid

 

Thinking back to my childhood I recall playing the “what do you want to be when you grow up” game with other kids.  My answer was always a resounding “mermaid.”  The water has always been such a central part of my life having grown up in the Bahamas.  When I broke my neck nearly 10 years ago, I couldn’t imagine how life would continue if I was unable to get back to the aquatic lifestyle I had become accustomed to.

When I was in the ICU and inpatient rehab the first few months after my accident, I was also battling a stage III pressure sore on my sacrum.   I could not wrap my head around how I would ever get back into the water.  I saw many other SCI folks start to dive back into activities in rehab, but I was not as fortunate. I was confined to bed rest all day, except for several hours of rehab, due to the raging pressure sore I had sustained during transport from the Bahamas to Miami after the accident.

While I stayed focused in rehab, worked on my computer, and made the best of my situation, I started to give up hope that I would ever get back into the water again.  Once I was released from rehab and sent home, I kept asking my caregivers and my mom every day if my pressure sore was healing, and I kept asking wound nurses how long it would take.  I didn’t know if I going to be able to get back in the water, but my family and I kept researching swim instructors anyway.  Somehow, I held onto a glimmer of hope despite the mounting medical challenges I was facing.

Read the rest on Push Living Magazine:  https://pushliving.com/aquatic-therapy-a-story-of-a-paralyzed-mermaid/

 

“A STORY OF THE GIGGLING UTERUS”

It all started with two little pills – one from above and one from below …

There are not often medical stories in my life that end up in giggles, smiles, and rainbows, but I am proud to say this one did!

In my adolescent years of spinal cord injury I developed several pulmonary embolism’s causing me to take blood thinners for several years.  As a result, high levels of estrogen in my blood (found in many contraceptive pills), which have the tendency to cause blood clots, would forever leave me in a situation where estrogen could quite literally kill me.  This posed a challenge for me as I became sexually active several years following my accident.

In my particular case, becoming pregnant would very likely result in my untimely demise.  Needless-to-say after being killed by several medical professionals years earlier due to a cockup with a certain medication; I was not particularly keen to repeat this experience nor have a little bun in my oven of my own. Continue reading

INSPIRATION WHERE YOU CAN’T SEE IT – FINDING YOUR LEPRECHAUN

The other day I was reading an article on how traveling on airlines are far from “accessibly” friendly to those in wheelchairs. In this article the story started out by featuring a wheelchair user in his mid-twenties named, and you may know him, Shane Burcaw.

If you have not heard of Shane before he suffers from muscular dystrophy and has been in a wheelchair since he was a child. Due to multiple contortions of his body he has to fly in a very intentional manner. His only weighs about 65 lbs., so he has to take a child’s car seat on the plane with him. He then experimented with multiple iterations of high-quality foam, which he spent nearly $8,000 on, to fit on the left and right of him in order to avoid pressure points. He actually did a video with his now fiancé on how he does this.

He’s marvelously funny and very articulate. He started a blog nearly a decade ago and is now a public speaker as well as having a very successful YouTube channel with his fiancé where they talk about relationships, and daily dating life. I highly recommend you check it out, but that’s not the point of this story.

The article sparked me to think about ‘inspirational” disabled people and those wonderful stories you read about those overcoming the greatest of odds in the face of the most adverse situations. Where do we hear most of the stories? Why on social media of course – Twitter, Instagram, Facebook, YouTube, you name it, and the stories are out there.

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Quirky Quad On Vacation

Hi Guys … I’m headed down to Miami for the next three weeks with my fabulous husband.  I’ll be taking a vacation from the Quirky Quad until I return in the beginning of November.

Follow along on Facebook for some great memories, adventures, and pictures to come!

 

 

 

 

DISABLED ENTREPRENEURS – THE POWER OF CHANGE

The obstacles many of us face with disabilities on a daily basis are challenging enough without having to constantly fight the uphill battle for basic medical supplies we need with insurance companies, durable medical suppliers, and the labyrinth of government assistance.  Many of us strive to create and live our lives to the fullest, but we are, oftentimes, faced with one roadblock after another.  The sheer determination and will of living with a disability is commendable enough, but there are so many people with disabilities who take that extra step to break the barriers within the business community in order to help their fellow disabled live a more independent life.

Read on Push living Magazine: https://pushliving.com/disabled-entrepreneurs-the-power-of-change/

 

THE “DEVILISH” RASCAL WITHIN – CHRONIC PAIN

Writing is a therapeutic activity for me as it helps calm my mind, reduces my pain levels, and allows me to try and help others from afar.  Over the last two weeks I repeatedly opened a new word document to write my next article only to find myself closing the program down after a few sentences.  This process repeated over and over again, and I chalked it up to writers block.

The other day as I was sitting on my computer thinking more critically about why I could not put words on paper as I kept fidgeting in every direction in my wheelchair unable to find a comfortable position.  I started to notice the pain in my neck has slowly been increasing over the last several weeks for no immediately obvious reason.  I had not changed anything in my routine, my diet, my exercise program, etc., but the piercing feeling of knives running down the scar on the back of my neck from one of my surgeries continued to persist.  This new pain has prevented me from maintaining my laser focus as I am usually accustomed to.

This prompted me to think about chronic pain more critically.  I scrolled back through many of my articles over the last several years and realized I have never taken the time to describe what chronic pain means to me and likely for the millions who suffer from it too.

Pain stems from inflammation in the body because inflammation is part of the immune system’s response to danger.  It’s a hugely complicated process to prepare our body to fight off hostile forces.  There are two main types of pain in our body – Acute Pain and Chronic Pain.

Acute pain usually comes on suddenly and is caused by something specific.  Acute pain does not last longer than six months and goes away when there’s no longer an underlying cause for the pain such as surgery, broken bones, dental work, burns or cuts, etc.

Chronic pain is ongoing and usually last longer than six months.  This type of pain can continue even after the injury or illness that caused it has healed or gone away.  Pain signals remain active in the nervous system for weeks, months, or years.  Chronic pain can include headaches, nerve pain, cancer, arthritis, fibromyalgia, etc.

A majority of folks who sustain a spinal cord injury suffer from extreme chronic pain in many forms after their accident. Before I broke my neck I would look at somebody in a wheelchair and wonder what they felt? … I thought they couldn’t feel their legs or their stomach, etc. I was epically wrong! Continue reading

Adaptive Technology Life Hacks

One of the first things we tend do in the morning is head to the computer to check emails, read the news, browse social media, etc. Many of these tasks are automatic, as we push the power button on our computer, move our mouse to the right icon to open the internet, and use the dexterity in our fingers to type the keys so seamlessly. Fortunately, touchscreen technology has made these things much more convenient. However, while some people are able to do everything on their touchscreen, some need complex software to be able to go about their daily lives at work.

A challenge faced by many who are quadriplegic and don’t have the use of our hands or arms, is how to automate many of these processes to make technology less intimidating, since many of us depend on “devices” in this day and age.

I need the full computing power of a laptop every day to work as a day trader, editor, writer, and to interact with the world, as I am home most of the time throughout the week. While I have a caregiver to help with my physical needs, the one area of privacy I need in my life is when I enter the digital world. I want to be as independent as possible.

Over the years, I’ve experimented with different adaptive technology equipment and software.  I’ve gathered input from many of my fellow spinal cord injury friends on what they use to interact in the digital world.  For many whose jobs don’t require constant use of a laptop or desktop, a tablet is sufficient for them, and they can use their paralyzed fingers to do all of their typing.  However, my needs are different and I’ve put together a list of adapted technologies with videos and links to show you how I work around some of the physical challenges I face.

 

Read the rest on Push Living Magazine: https://pushliving.com/adaptive-technology-life-hacks/

 

 

To Be or Not To Be an “INSPIRATION PORN STAR?”

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“Inspiration Porn” is a term I have been reading about lately in many articles across different forums.  At first I was confused as to what was behind the meaning, but from my understanding, it’s when people who don’t know you see you in a wheelchair, approach you, and tell you what an inspiration you are.  Mind you they don’t have any back story on who you may be except that they see a person in a wheelchair or with a disability.  They then proceed to tell you what an inspiration you and I assume it is meant for simply being in a wheelchair.

There appears to be much controversy over this as many folks, whom I have spoken with, are not necessarily offended, but frustrated at the fact that able-bodied people see them as an inspiration for just having a disability.  You may be a lazy person with no ambition, but simply because you are in a wheelchair you are an inspiration to them.  I can certainly understand why this would aggravate many because people with disabilities since they just want to be seen as “normal” people who are complemented on being inspiration for what they do; not just for the fact that they are in a wheelchair.

However, I have a slightly different outlook and perhaps my dark sense of humor might contribute to this, but when someone calls me an inspiration even when I am just sitting quietly in a corner I always seem to find myself chuckling in amusement.  Also, I love to be different and my wheelchair is just one part of my life that sets me apart from many others.

The way I look at it is this – Continue reading

“THE RIGHT CIRCUMSTANCES”

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Aaron and I just got back from our honeymoon the other week where we drove several hours from Raleigh, North Carolina to Asheville, North Carolina. I had been wanting to see Asheville for the past 15 years and Aaron had attended University in that neck of the woods. People fly all over the world to visit this lush and scenic city, and I can’t believe I had lived in Raleigh for the last several years and not made a trip over there. We decided to forgo an international honeymoon to save on plane tickets in order to have a five-star honeymoon in Asheville.

We embarked on so many adventures, stayed in extravagant resort hotels, explored several of the hundreds of breweries, went on a waterfall adventure, partook in some hand glassblowing, joined in on the Friday night drum circles in the heart of downtown Ashville, and so much more. At the end of this blog you’ll see a myriad of fun photos from our adventures.

While we were having a lazy morning in bed one day a topic of conversation arose with respect to all of the circumstances in life that had to play out accordingly in order for us to be where we are today. There are folks in life where the puzzle pieces just seem to fall where they may and life works out smoothly. For most of us, this is not really the case. We have to work hard, throw in some blood sweat and tears, push through challenging hardships, and go through our personal journeys in order to achieve where we are in life today.

This is no exception for the two of us. I cannot speak for Aaron, but as for myself, there are so many factors being paralyzed I had to overcome to have that lazy morning with my husband on the most romantic honeymoon. Continue reading

A FAIRY TALE WEEKEND OF WEDDING CELEBRATIONS

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When I moved from China to Raleigh back in 2015 I could not have imagined ever getting married, let alone getting married to my “Partner in Crime” and best friend.  I married Aaron Watkins on Saturday, May 18 and it was one of the happiest days of my life!

I would be remiss not to clearly thank my family and Aaron’s family for everything they did to make this wedding possible.  My parents have been there every step of the way for me, unwavering in support and love, which is why I truly believe I am where I am today.  Sometimes they say it takes a village to raise a baby, but in my case it took a clan of Ingersoll’s to raise me after the accident.

I was so certain when I was first injured 9 years ago that I would have a fulfilling life, but a life without love and a partner.  I had come to terms with this and made peace in my mind.  What I did not realize is how much love can literally transform one’s outlook on life.  I used only live from one challenge to another – now I look forward to future adventures, and when those challenges do arise I know will have someone by my side every step of the way.

Originally we wanted to have a very small ceremony with immediate family only, but my father thankfully convinced me this was an occasion we would not want to forget.  He was right in more ways than one.

We had family and friends from Raleigh, around the United States, London, Germany, France, and China join us for four days of round-the-clock festivities.  It was a world wind weekend and I prepared for months to make sure everything went smoothly – and it was over so quickly.  Everyone always told me to make sure to take a moment and enjoy everything around you when you’re getting married, which is exactly what I did.  I neurotically planned everything down to a T and the week before the wedding I was relaxed, present, and able to connect with people who I had not seen in over 10 years.

I didn’t even realize how much love Aaron and I have in our life and support around the globe.  Living life is about people, relationships, and quality time in my opinion.  I know at the end of my life I will not look back at how hard I worked, but rather the people who have influenced my life, and I theirs.

While I meticulously planned the wedding there are just certain factors you cannot control.  I ended up getting severe bronchitis three weeks prior to the wedding.  I did everything in my power and by some universal grace I stopped coughing four days before the wedding.

Unfortunately, I also developed a pressure sore that Thursday before the wedding.  I was very careful, leaned back in my chair a lot to shift the weight off my bum, and I don’t know why or how, but I got really really lucky!

Now, onto the Wedding Celebration Festivities:

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