SPENDING A YEAR IN BED

SPENDING A YEAR IN BED:

New YouTube Video Out — Quirky Quad “Shower Talk with Ali” — UNCENSORED!

I bet you don’t know a lot of people that have spent a year in bed. Why would you? This is definitely not normal. I’ve written about it before, but I take you on my video journey with probably more information and photos then you care to look at, on what my life was like when suffering from a major pressure sore down to my tailbone in 2015.

This is a story of hardship, triumph, mental fortitude, sexy ICU Photoshoot’s, a ton of dark humor, and how I survived an extremely traumatic experience in my life.

Most people think the physical side of living in your bedroom for nearly a year looking at four walls was the most challenging part with all of the surgery, but it really was all mental!

Some of the strategies I employed in my own life have allowed me to get to where I am today and be who I am today! Leaving my professional skill sets aside, having a lived experience with disability makes so many of us profoundly capable of so much more than society and companies give us credit for.

We only need the chance to prove that we are incredibly resilient human beings, intelligent, resourceful, seriously organized, incredible at paying attention to detail, and determined to succeed more than most I would argue.

Enjoy, but I will warn you there are some graphics that might be a little bit disturbing, but are 110% real life.

Living with a spinal cord injury as a quadriplegic is no joke. Death is quite literally around every corner every day of the year. Food for thought when you think about perspective in life.

Online Wheelchair Dating Tips

“ONLINE WHEELCHAIR DATING TIPS”

New YouTube episode out now – My dating life in a wheelchair as a C6 quadriplegic

Talking to you today about disability dating. Specifically, online dating tips I’ve used as a woman in a wheelchair and a C6 quadriplegic. Dating is challenging no matter who you are, but online dating is even more daunting – now online dating with a disability presents its own unique set of challenges! Several years ago before I got married I went on a giant dating experiment. I was facing a major surgery for a pressure sore I had and I had about five months to go before my 11th surgery.

I decided, quite truthfully, to just try and sleep with as many men as I could to explore my disability and sexuality. I probably should not be writing about this online or making a video, but this is my reality.

It took me 5 years to gain the courage to even start dating after my accident when I broke my neck in a shallow water diving accident in 2010 leaving me paralyzed from the chest down with limited hand mobility. Throughout my dating adventures I ran into all kinds of strange people, great people, and some guys who simply were curious about what it was like to sleep and/or date a woman in a wheelchair.

I have a very quirky sense of humor, so I created an Excel spreadsheet to monitor my success for online dating. I have been through it all. Hopefully some of what I have been through you will not experience, but I was on an experiment in the name of research! specifically, disability dating research! Even through my failures and successes I learned so much. Let me take you on a journey of some of my dating mishaps and wonderful successes!

Pushing Boundaries – Question the Status Quo!

Many of you know I’ve been fighting for an adaptive rowing machine called the Vitaglide for some time now with Blue Cross and Blue Shield.

I hit a dead end working directly with BCBS policy directors and I’m now introducing legislation with NC State Senator Jay Chaudhri in May. Very exciting!

In the meantime, I’m working closely with all of the folks at Vitaglide for promotion awareness of adapted exercise equipment for long-term wheelchair users.

They were so kind to write an article on me and all of the work I’m trying to accomplish with respect to health equity and not just health equality!

Every time I fail something, and I do fail quite a lot, or something stops dead in its tracks, I usually have 10 other things in the works.

Life can be utterly exhausting, but I know one person can make a difference even if it is only to inspire others to carry on the work they have started!

Thank you Vitaglide team for highlighting some of the work I am engaged in and spotlighting my consistent efforts for which I won Miss wheelchair North Carolina 2022 on — Health Insurance Advocacy! Nationals here I come in Grand Rapids Michigan from August 15th to August 21st!

www.vitaglide.com/one-determined-woman/