It was such an honor to be a guest on Karen Roy’s Life Possible with a Disability Podcast. Karen Roy is a good friend and fellow Disability Advocate in the community. We talked on a range of subjects from love, life, adversity, and fighting for medically necessary equipment in the health insurance world, and what that entails.
Karen is a rock star in her own right who has been pushing for equal access to exercise equipment for those with disabilities, is Ms. former Wheelchair America, and now works with a large Durable Medical Equipment Company to push the boundaries for patient access in the health insurance world.
We had a great conversation and I do hope many people are able to take a lesson out of what we talked about in the podcast:
It’s not a very well-kept secret that the insurance industry can be unjust in addressing the needs of many of us with disabilities—especially when it comes to attaining the medically necessary equipment and services we need to improve our quality of life and independence. While countless folks in the disability community are frivolously working to change the system, the reality is that we need to learn to advocate for ourselves within the current broken system. It’s not impossible. But it does require a bit of ingenuity, persistence, and sheer determination.
I was injured in a shallow water diving accident in 2010 leaving me a C6 quadriplegic. I was left to fend for myself with respect to fighting for the equipment I needed for my daily survival in my home. While I have an army of medical professionals in my Rolodex, many of them are overwhelmed by the number of requests to write medical necessity letters to insurance companies. As a result, I discovered early that I was going to have to learn how to become my own self-advocate.