CBS Live Interview – Healthcare Policy Change

I am truly beyond humbled and incredibly honored that CBC17 News crew in Raleigh came out to my home to do a story on Ms. Wheelchair North Carolina 2022 and the efforts many of us are making in trying to reform healthcare policy within the insurance system.

“Self Advocacy” is the single driving mission I have in my life to help others with disabilities not only survive in their life, but thrive through aiding them in getting the medically necessary equipment and services they need in their own lives!

This will always be a long-term advocacy project of mine and I will not stop until we see systemic change, but in the meantime, we need to navigate the broken system we presented with, which takes a village of disability advocates standing up for the masses!

Without Further Ado:

PODCAST with Kevin Lowe

I was the guest on a super cool podcast with the most amazing gentleman named Kevin Lowe.

Kevin has an incredible story in his own right and he certainly makes the most of life with his incredibly quirky, and hilarious sense of humor.

Kevin too, shares a disability with me, but his is in the realm of sight. He is blind and has navigated his life so eloquently, with grace, and a ton of humor.

We had such a fabulous time during this podcast that I felt like I was chatting with an old friend who I had known for years!I would love for you to check out his podcast and start listening to him!

Balancing Disability Advocacy & A Professional Career

I’m super honored to be a contributing writer to the CHRISTOPHER & DANA REEVE FOUNDATION.

When you believe in something larger than yourself, it’s quite extraordinary what you are able to accomplish. After becoming a complete C6 quadriplegic in 2010, it took me quite a few years and multiple long stents in the hospital to come to the realization that I simply had to find a coping mechanism for living an entirely new life in a very different body.

Read the rest …

Balancing disability advocacy & a professional career – Reeve Foundation

A Life Through the Lens of Dark Humor

The absurdity of spinal cord injury with respect to the fact that being paralyzed is oftentimes the least of your challenges as compared to the endless secondary medical complications, caregiving challenges, financial burdens, to name a few, can turn a perfectly sane individual into one who is tinkering on the edge of insanity.  The question remains is how do so many of us with these life altering changes cope with, what can only be described at times, as a revolving circus carnival of animals? 

We each develop and build upon our own coping mechanisms as the year’s progress and as we become a little bit older and wiser in spinal cord injury years.  For me, dark humor is, bar none, my number one savior to get me through most days.

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How Expensive is it to be a Quadriplegic? A Grim Reality

Becoming a quadriplegic and being paralyzed from the chest down may appear to be the most challenging life altering event many may ever go through in their life.  However, leaving aside the endless secondary complications that can arise from living a life with paralysis such as pressure sores, nerve pain, respiratory issues, osteoporosis, infections, bowel obstructions, bladder incontinence, to name a few, can, often times, pale in comparison to the financial burdens associated with living a life with paralysis.  The financial hardships associated with any type of disability, one could argue, is more debilitating than the disability itself!

For the purposes of this article I’m going to be discussing some of the financial challenges and realities of living a life as a quadriplegic as opposed to a paraplegic.  In general, a quadriplegic needs round-the-clock care to help with basic functions such as going to the bathroom, eating, dressing, etc.  While every injury is different and there are certainly some quadriplegics who I know who live independently, I will tell you about my life in particular. 

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Spectrum Local TV News Story – Disability Advocate Draws Attention to Lack of Inclusive Policies

I’m super excited & honored to have been featured in a news story by Spectrum News on disability inclusion in light of recent events with the paralympian who was unable to bring her caregiver, her mother, to Tokyo.

As I always say, Disability Doesn’t Discriminate — anyone can join the club for any reason and creating a globally inclusive environment whether that be in the paralympics, employment world, your community, the government, etc. should be at the forefront of everyone’s mind!

https://spectrumlocalnews.com/nc/triangle-sandhills/news/2021/08/24/disability-advocate-draws-attention-to-lack-of-inclusive-policies

Rebel Love Podcast Now Live

Love, Sex & Orgasms …Yup, I went there live on Rebel Love Podcast!It was a blast speak with Talia on so many subjects and shedding light on disability and sexuality.

Naturally this is a topic near and dear to my heart since my website has a tagline on this very topic!I don’t know if many of you know this, but my entire advocacy mission in life started 6 years ago because of a dating experiment I would write about on my Facebook page.

This is actually how the QUIRKY QUAD Diaries was founded… Simply trying to show women with disabilities that a love life is absolutely possible even in a wheelchair 🙂

Also, to be completely honest it was super fun to write about sex at a time when I was dealing with major life changing surgeries!

EP39: Life As A Quadriplegic After A Shallow Water Diving Accident: Ali’s Story

Flowing East and West: The Perfectly Imperfect Journey to a Fulfilled Life all Podcast

I’m super honored to have been a guest on this incredible Podcast with two amazing ladies!

https://podcasts.apple.com/us/podcast/flowing-east-and-west-the-perfectly-imperfect-journey/id1546631522

Here’s the intro of what the podcast is all about – FEET FIRST:

“Ali Ingersoll had a somewhat charmed upbringing, attending boarding school abroad, going on amazing adventures and taking advantage of every opportunity that showed up.  Then a life-changing accident happened when Ali took a head-first dive into shallow water.  Feet First not only describes Ali’s plea for anyone jumping into shallow water, but also how she has lived her life, both before and after the accident.  While she is now restricted to a wheelchair, Ali continues to live life to the fullest  – wait until you hear her dating stories (sorry, guys, she is now happily married!) – we were both laughing hysterically.  This in no way means Ali hasn’t had ups and downs – indeed, she speaks very candidly about her challenges and dark days. However, in her toughest moments, she has developed an incredible resilience and a “radical acceptance” that we cannot help being inspired by.

Ali reminded us of this quote which we think perfectly sums up how she lives her life:

Disasters lead to the best stories – Ali Ingersoll

Ali Ingersoll is a day trader, consultant, disability advocate, writer, blogger, editor, and public speaker. She started her advocacy mission after being repeatedly denied medically necessary equipment by insurance companies over the last 10 years since becoming a C6 quadriplegic and full-time wheelchair user after a shallow water diving accident.”

Ali’s passion lies in coaching people with disabilities on how to improve their quality of life by teaching them to self-advocate in order to live a life of independence, dignity, and grace.

Ali has a firm philosophy of paying it forward by giving back to the community through outreach, working together, and building each other up. She believes it’s important to band together as one in order to affect the greatest change on the national stage and in local communities.”

Playing The Insurance Game — 4 Secrets to Attaining Medically Necessary Equipment

It’s not a very well-kept secret that the insurance industry can be unjust in addressing the needs of many of us with disabilities—especially when it comes to attaining the medically necessary equipment and services we need to improve our quality of life and independence. While countless folks in the disability community are frivolously working to change the system, the reality is that we need to learn to advocate for ourselves within the current broken system. It’s not impossible. But it does require a bit of ingenuity, persistence, and sheer determination.

I was injured in a shallow water diving accident in 2010 leaving me a C6 quadriplegic. I was left to fend for myself with respect to fighting for the equipment I needed for my daily survival in my home. While I have an army of medical professionals in my Rolodex, many of them are overwhelmed by the number of requests to write medical necessity letters to insurance companies. As a result, I discovered early that I was going to have to learn how to become my own self-advocate.

Read The Rest on New Leaf Home Medical

https://newleafhomemedical.com/knowledge-center-articles/playing-the-insurance-game-4-secrets-to-attaining-medically-necessary-equipment/

Disability & Inspiration – Common Misconceptions

As a C6 quadriplegic injured in a shallow water diving accident in 2010 leaving me paralyzed from the chest down and a full-time wheelchair user, I am no stranger to being called an inspiration on a regular basis as so many others with disabilities undoubtedly find themselves in similar situations.  

The challenge for many people with disabilities being called an inspiration lies in the perception beneath the word “inspiration.”  Are we being called an inspiration simply because we are living a life with a disability and able-bodied people find it inspirational that we are surviving a life simply because of our disability?  Or, are they calling us an inspiration because of our accomplishments and contributions to society just as any other member of the community?

Read the rest on The Rotary Club!