As a C6 quadriplegic injured in a shallow water diving accident in 2010 leaving me paralyzed from the chest down and a full-time wheelchair user, I am no stranger to being called an inspiration on a regular basis as so many others with disabilities undoubtedly find themselves in similar situations.
The challenge for many people with disabilities being called an inspiration lies in the perception beneath the word “inspiration.” Are we being called an inspiration simply because we are living a life with a disability and able-bodied people find it inspirational that we are surviving a life simply because of our disability? Or, are they calling us an inspiration because of our accomplishments and contributions to society just as any other member of the community?
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If you’ve ever applied to college you’ll likely remember waiting anxiously by the mailbox for that large envelope, which was filled with hopes and dreams of your acceptance letter into the school of your choice. The small envelope on the other hand, filled with dread and disappointment, meant that you were likely going to have to fall back on your Plan B School.
As the years roll by and you grow up that distant memory of the large envelope stays with you. It certainly stayed with me. Over the last several years after fighting health insurance battle after health insurance battle I quickly came to realize the large envelope in your mailbox was the one filled with despair, rejection, and disappointment. I dread that big envelope in my mailbox that has Blue Cross and Blue Shield labeled in the top right corner.
Over the past several months I’ve been tirelessly working on two major insurance battles, which has taken my every waking moment to push forward on while simultaneously building up my disability advocacy career from every angle I could think of. Every day as I would roll down to the mailbox my throat would get a little bit tight, my blood pressure would start climbing, heart racing, and as I was watching whoever was helping me open the mailbox that day turn the key I waited in eager anticipation for either the small envelope or the large envelope.
he last two battles I’ve been fighting have been for the VitaGlide, an adapted physical exercise rowing machine, and a total hospital electrical bed. Blue Cross and Blue Shield had initially rejected both requests. The total hospital electrical bed was rejected on the grounds that it was not medically necessary and the VitaGlide on the grounds that it was a non-covered benefit. I’ll explain the difference in a moment, but I’ll start out by saying when you are rejected on the basis of something not being medically necessary you have many more avenues to pursue for appeals than you do if you get rejected because an item is a non-covered benefit under your insurance plan.
Let me tell you my story … on PushLiving Magazine: https://pushliving.com/the-never-ending-health-insurance-battle-a-year-later/
SOO EXITING …
News & Observer media article now out on my battle for medically necessary equipment.
ABC 11 news story should be out next week. Just the beginning of a very long journey to advocate for those who can’t advocate for themselves!